Our mission is to raise awareness and funding for treatments for Usher syndrome, the most common genetic cause of combined deaf-blindness.
Bridging the gap between researchers and those impacted by Usher Syndrome.
Saving Sight and Sound, Inc is a 501(c)(3) organization, Tax ID: 83-2120390. Download 501(c)(3) – Tax Exempt Determination Letter from IRS – Saving Sight and Sound
A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, 1-800- 435-7352 (800-HELP-FLA) WITHIN THE STATE OR VISITING www.800helpfla.com. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. Florida charitable organization license number: CH56981.
A copy of our filed Form 990s can be found on the IRS website here.